There is an almost overwhelming amount of information available about hospice, hospice care and palliative care on the internet, in books and in periodicals.
We have researched and gathered the following links to make your search for information easier and less time consuming. Each website that we have listed may be viewed free of charge.
We have also included brief summaries for each link so that you may focus your search on your specific areas of interest.
Each of these links is an excellent information source that will help you better understand hospice, hospice care, palliative care and other end of life issues.
There are many websites available that are excellent sources of information. We offer these only as a starting point for your research.
Please don’t forget that we are always available to you at any time and without obligation to discuss any issues that you either (1) cannot find satisfactory answers for or (2) prefer to discuss in person rather than by conducting research on your own.
Hospice Care Information Sources
Texas Department of Aging and Disability Services
The Texas Department of Aging and Disability Services (DADS) offers information on this wonderful website to help you evaluate the quality of long term care service providers, including hospice agencies, nursing homes and residential care homes. You can review facility ratings, consumer complaints and discrepancies that State inspectors have recorded over the past several years for each facility and organization.
The American Hospice Foundation
This site covers the full range of hospice care and includes helpful articles, publications and resources relating to end-of-life issues and hospice care. Excellent information, clearly written, easily read and understood.
An excellent website for professionals and the general public. In their own words, “Growth House, Inc. provides this portal as your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Our search engine gives you access to the Internet's most comprehensive collection of reviewed resources for end-of-life care.”
Look in particular at their “Handbook for Mortals” for a wide range of excellent information on end of life issues including pain, pain control, specific illnesses and related topics. You can learn about a vast number of end of life topics on the internet at no cost by using the hyperlinks provided on this website.
On Our Own Terms
This PBS website summarizes the four-part, six-hour series that took Bill Moyers from the bedsides of the dying to the front lines of a movement to improve end-of-life care. The site combines multimedia, online articles and resources for further research. Very well done.
American Academy of Hospice and Palliative Medicine
This site is most helpful for its End of Life/Palliative Care Educational Resources link and its “related sites” resources link.
The National Hospice and Palliative Care Organization
The oldest non-profit organization devoted exclusively to hospice care. Use the Hospice and Palliative Care link for an excellent source of information on all aspects of hospice care. You do not have to be a member to access most of the information resources on the website..
Hospice Net – Death and Dying, Caregiving and Grief
An outstanding collection of information in one location. In addition to general information about hospice, this site also provides specific information of interest to hospice patients, caregivers and children. The topic of bereavement is also detailed.
Americans for Better Care of the Dying
Go right to the “Reading Room” link for discussions of topics including “Living With Illness”, “Finding Meaning”, “Helping Loved Ones”, “Getting the Help You Need”, “Talking With Your Doctor”, “Managing Symptoms” and others.
Partnership for Caring provides free state-specific advance directive documents that can be opened as PDF (Portable Document Format) files. The documents include of living wills and/or medical powers of attorney forms with clear instructions for completing them, as well as advice on how to handle the notable points of law. If you have additional questions, they also list their toll free hotline. Note that you should always consult with your own attorney before using forms such as these.
Medical Information Sources
This provides a comprehensive source of information on medical conditions, diseases, wellness and prescription drugs. The site also includes a medical dictionary and encyclopedia, as well as online interactive tutorials on a variety of medical conditions and diseases.
This site is for those who want to conduct very detailed research on medical conditions and diseases. PubMed, a service of the National Library of Medicine, includes over 15 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed also includes links to many sites providing full text articles and other related resources.
This website of the National Cancer Institute is an excellent source of information for your questions regarding cancer.
Resources for Specific Illnesses and Conditions
When the U.S. hospice community was established in the 1970s, cancer patients made up the largest percentage of hospice admissions. Today, cancer diagnoses account for less than half of all hospice admissions. Currently, the chronic illnesses we see the most are Alzheimer’s and adult dementia, lung disease (including Chronic Obstructive Pulmonary Disease or COPD) and heart disease.
Please visit these websites as one of your resources for more information on these illnesses.
Alzheimer’s disease and Adult Dementia
The National Alzheimers Organization
Use the navigation bar at the top of the page to review the information in
“Alzheimer’s Disease” and “Living with Alzheimer’s”. Other pages on the website
may also be of interest to you.
HealthCentral.com - Alzheimer’s information
This is a free site although you may register as a member, if you wish.
Lung Disease Including Chronic Obstructive Pulmonary Disease (COPD)
This site is easy to read and has good, although basic, information about COPD.
This is a support site for those with COPD. Go to the “Weblinks Program” section
for a comprehensive list of websites that have information on all aspects of COPD.
American Lung Association
We take you to the area of their website that provides information on the various diseases of the lungs. You may find other areas of interest on their website.
Heart Disease and Stroke
The American Heart Association
This site provides comprehensive information about heart disease. You can use the search function in the upper right corner to research specific issues of interest.
Use the “Health Centers” navigation bar on the left to learn more about heart conditions and strokes.
Bereavement Information Sources
Hospice Net- Bereavement
Hospice Net is also listed above as a hospice care resource, but we list it here again because its section on bereavement is excellent.
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. It consists of a number of email support groups and two web sites. GriefNet’s integrated approach to on-line grief support provides help to people working through loss and grief issues. Its companion site, KIDSAID, provides a safe environment for children and parents to find information and ask questions.
Autumn Journey Hospice
5347 Spring Valley Road
Dallas, TX 75254